HSS CPOC Service Annual Report 2021

Service Report May 2021 Colorectal and Peritoneal Oncology Centre – The Christie NHS Foundation Trust

4 Patient and Public Engagement

4.1Patient Day Since 2016 we have been holding an annual patient day at The Christie. We had 113 registered for our patient day in April 2020, but sadly this could not go ahead due to COVID-19. In April of this year, the same restrictions applied and we held our support day virtually so our patients still felt supported in some way. We had 3 patients attend our auditorium to share their stories, presentations from our physiotherapists, a clinical psychologist and Consultants from the team. The day included a live question and answer session. 34 patients signed on virtually and despite not being able to network with each other, we received overwhelmingly positive feedback. As a result of this, when we can resume our support day face to face, we will continue the virtual platform alongside it so those who cannot make it to The Christie can still benefit from the day. Our next day is planned for the 21 st of April 2022. Here are some of the comments from our first virtual patient support day: “Once again a very interesting and moving day. Stories of hope and courage that inspire. The day makes me feel like I’ve got a support network that is so comforting. The dedication of the Christie Team is humbling. Thank you to Rebecca for creating a platform that we are able to express ourselves, understanding our disease and treatments available.” “Great to hear other peoples’ journeys as they differ so much yet also have so much in common. Helps me to feel less isolated”. “A great event! Event was well thought through and executed. An enjoyable and insightful day!” “This was my first patient day and I am so impressed. It’s given me a real lift and made me feel so much more empowered in my treatment and care.” “Very informative, supportive and uplifting. In the absence of not being able to arrange a face to face day, this was the next best thing.” “Great having it online as I live 350 miles from Christie's” “We found the day extremely informative and helpful, hopefully next year we will be able to “The day lacked the important issue of "mingling" and sharing experiences with others which can be really supportive. However, in the circumstances the on line day was excellent” “Really useful blend of the medical information/expertise and patient experience” “Stories of hope and courage that inspire” “It made me feel so much more empowered in my treatment and care” “Given the difficult circumstances the patient day was an absolute success, well done to everyone involved” meet face to face and exchange experiences” “Very informative supportive and uplifting”

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